INJECTION TIPS FROM CAREGIVERS
Lori - Mom: Nobody prepares you for this. Right? We were lucky to have a great healthcare provider who trained us on the injection process, including how much to inject and how often.
Wendy - Grandmother: It's definitely been a learning curve, learning how to administer an injection to my granddaughter.
Rahmel - Father: I was a little overwhelmed in the beginning, but I found being calm is super important. My daughter Kia and I practice ways to keep calm. We like taking deep, long breaths together before we start.
Deantre - Healthcare Professional: I always told parents just to have a plan because kids pick up on your nervousness. If you're calm, they're calm.
Amanda - Healthcare Professional: That's for sure. A lot of kids do well with a little calm chit chat, but others could benefit from other activities. So you want to have a few options ready ahead of time.
Lori - Mom: I tried all sorts of things before we got into a comfortable routine. Distractions with toys, holding an ice cube to the injection site and having him get involved in the process like getting a cotton ball or an alcohol wipe. I've learned the best distraction is other family members. His older sister tells the best jokes.
Wendy - Grandmother: And it can change as they get older. My granddaughter, Emma, didn't want anything to do with the pre injection process when she was younger. But now, helping out really gives her a sense of control. She gets the alcohol swabs and I get the medication from the fridge.
Deantre - Healthcare Professional: Where and when you administer the injection is important as well.
Lori - Mom: Exactly. Eventually, we found doing the injection at the kitchen table allowed us to maintain Austin's bedroom and playroom as play spaces. I don't know why it worked, but we just stuck with it.
Amanda - Healthcare Professional: Well, the kitchen is the heart of the home.
Lori - Mom: Yeah. Maybe that's why.
Rahmel - Father: It's because the cookies are closer.
Lori - Mom: Yes. I can just grab one. Yeah.
Deantre - Healthcare Professional: One thing I also tell parents to patients is practice patience, because you got to realize that these are young people that we're dealing with.
Christine - Healthcare Professional: I always like to give as many options as possible and just trying to get them involved in the process so they have some control of something that they have no control over really.
Wendy - Grandmother: Yeah. A lot of times I would say, "Do you want to do this before breakfast or after dinner?"
Christine - Healthcare Professional: Right.
Wendy - Grandmother: And giving them that choice of the time of day. I'm finally comfortable giving the injections. But my granddaughter, Emma, is such a trooper sometimes I forget she's still just a little girl and she could use some reassurance.
Amanda - Healthcare Professional: Always remember, uncertainty can cause anxiety. I always tell parents and caregivers a little encouragement and understanding goes a long way.
Deantre - Healthcare Professional: Look, when it comes to the actual injection, your physical technique is important. Leg and arm hold methods are simple to learn and reduce squirming. Don't forget to refer to any instructions for use before any injection, for additional information and to use as a reference.
Christine - Healthcare Professional: And there's so many options out there now. You can numb with an ice cube. They have devices that divert pain signals, it like vibrates on your arm so they don't feel the injection so much. They have numbing creams, numbing sprays.
Lori - Mom: Right.
Christine - Healthcare Professional: There's so many things and every child is going to want something different. Some don't want anything at all.
Lori - Mom: Yes.
Wendy - Grandmother: Yeah. My granddaughter's really into the imagination type style, so it always involved her stuffed animals and unicorns and the fake shot injection. And it's like, Okay, if I'm getting this, then so is Panda, so is Uni. It was like, Okay, well who's going first and it just created almost like a magical land for her and she just really seemed to enjoy it more.
Rahmel - Father: At first, simply explaining what I was doing and how the treatment was going to help calmed my daughter down. She's really into taking an active role in managing her condition.
Christine - Healthcare Professional: One thing I would suggest is to let your child's likes lead the way. If they like music, sing a song with them while giving the injection. If they like stories, have them read one to you or read one to them.
Lori - Mom: Great point. Our son loves superheroes, so I made up a superhero. His name is Flash Bang.
Deantre - Healthcare Professional: Flash Bang.
Lori - Mom: And I tell him a two-minute story when I give the injection. Now he looks forward to new episodes so much. He reminds me as we get ready, which makes everything easier.
Wendy - Grandmother: The basics work for us, the calm chit chat, and then using toys and screens as a distraction.
Deantre - Healthcare Professional: You know what? Parents have an advantage. When we work with young patients, we have to earn their trust. You guys already have it. Be calm, confident, positive as you give the injection, eventually it'll become routine.
Lori - Mom: We use screen time as a reward. It helps make it a positive experience and gives them something to look forward to after the injection.
Christine - Healthcare Professional: Rewards after the injection are a great idea.
Wendy - Grandmother: Yes. It was important for me to get to know Emma's likes and dislikes. It's tough though because they changed so often. One day, bringing her giant stuffed panda into the room worked like a charm and the next it didn't. Sparkly stars and unicorn stickers though, that's where we're at now.
Rahmel - Father: We're all so busy with work and school schedules, we make the reward all about spending time together with a game or movie night and she gets to pick the game or movie. She beat me last time too.
Amanda - Healthcare Professional: Don't let yourself get too stressed out about the reward thing. I have a lot of little patients that react to very simple stuff. New, fun bandaids, extra hugs, sometimes simple is best.
Lori - Mom: Throwing in a few sweets never hurts. I like to mix up the rewards that way he's looking forward to finding out what the next reward will be. It makes it feel like a celebration.
Rahmel - Father: I mean, this has definitely been great sharing this experience with the other caregivers.
Lori - Mom: Yes, so helpful.
Rahmel - Father: Especially healthcare professionals, you guys have just made this process so much easier. So many new tools for my toolbox that'll make this whole process much better.
Lori - Mom: I'm glad we were able to get together and do this for them.
VO: